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ALZHEIMER'S -- that dreaded disease Alzheimer's disease (AD) was first diagnosed in 1907 by Alois Alzheimer although the name has not been used until recent years. It is a progressive, degenerative disease that attacks the brain and results in impaired thinking, memory and behavior. A few statistics, it affects about 4 million Americans with more than 100,000 dying annually. It is the 4th leading cause of death in adults, after heart disease, cancer and stroke. Alzheimer's can effect anyone. There do not appear to be any economic, social, racial or national barriers. Although more victims are over 65, cases do occur in middle age with the youngest documented case of 28 years old. AD has a gradual onset beginning with memory loss, inability to perform routine tasks, impairment in judgment, disorientation, personality change, loss of intellectual ability and advancing to total inability to take care of oneself. How quick these changes occur varies from individual to individual. The average length of the disease is eight years from the time symptoms first appear but again it varies with the individual. What causes this horrible disease? Unfortunately, the cause is still to be discovered. Scientists are investigating genetic predisposition, slow virus or other infectious agents, environmental toxins, and immunologic changes. Also, to still be discovered is a cure. Good planning and medical and social management can ease the burdens on the patient and the family. There is no single test to determine AD. There should be a complete health history including physical examination, neurological and mental status assessments along with diagnostic blood studies, urinalysis, electrocardiogram and chest x-rays. There could also be psychiatric assessment and other testing as well, again this varies. Medications can lessen agitation, anxiety and unpredictable behavior, and improve sleeping patterns and treat depression. Exercise and social activity as well as proper nutrition are important to keep the patient functioning as much as possible. As many of you have experienced, either personally or through friends and neighbors, Alzheimer's disease also affects the patient's family. The family and frequently friends bear the emotional, social and financial burden of caring for the patient. Often, the caregiver forgets about his or her own physical, mental and social health. Caregivers and non-care giving family members sometimes feel angry, afraid, depressed, confused and overwhelmed. Sometimes, they do not recognize these feelings and may even deny the seriousness of the situation. There is the feeling of guilt and self doubt for taking away the patient's independence. There is a lot of adjusting for the caregiver, a lot of decisions to make and they will need a lot of help. Fortunately, there is much help available in both Pinellas and Pasco counties through a variety of organizations. When Alzheimer's disease is diagnosed in a family, it is important share the responsibility with family. Particularly, in the early stages, the patient is able to continue make decisions. Sometimes they are able to participate in legal and financial planning to protect their assets. It is critical, that the Alzheimer patient and family obtain knowledgeable, professional, legal advice without delay. This kind of planning can be upsetting for the patient as well as the loved ones. When done early in the disease, it is possible for the AD patient to have considerable input into the handling of their affairs. Some of the legal documents might include: durable power of attorney, will, living will, nomination of pre-need guardian, trusts, and health care power of attorney. There is an ever growing number of groups and resources available to help through this stressful situation. Ask. Ask your doctor, ask your clergyman, ask your attorney.
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Copyright © 2002 Law Firm of Raymond L. Parri, P.A., All rights reserved.
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